You Are Not Alone
Living with Orthostatic Tremor (OT) can be isolating, and connecting with others who understand your experience can make a meaningful difference.
The Orthostatic Tremor Support Network is a welcoming, peer-led online community for individuals living with OT, as well as their families and caregivers. We come together to share lived experiences, offer encouragement, and exchange practical strategies for daily living.
Together, we are stronger.
Join our free twice-monthly Zoom support group.
What Is Orthostatic Tremor?
Orthostatic Tremor is a rare neurological movement disorder characterized by a rapid tremor in the legs that occurs while standing still. Common experiences include:
Difficulty standing still
Shaking or unsteadiness in the legs
Symptom relief when sitting or walking
Delayed diagnosis due to the rarity of the condition
If this sounds familiar, please know you are not alone.
About Our Support Group
Our peer-led support meetings provide a safe and supportive environment where members can:
Share personal experiences
Learn practical coping strategies
Connect with others around the world
Discuss emerging research and treatment approaches
Receive emotional support and encouragement
Whether you are newly diagnosed or have been living with OT for many years, you are welcome.
Meeting Information
Online via Zoom
First Monday of every month
9:00 AM Pacific Time (USA)
Third Monday of every month
4:00 PM Pacific Time (USA) - Tuesday Morning Australia
Free to attend. Registration is required (select appropriate link above).
Join Our Global Community
Between meetings, we also stay connected through our Facebook community.
Facebook Group: Orthostatic Tremor Support Network
For Neurologists & Healthcare Professionals
We welcome healthcare professionals who care for individuals with Orthostatic Tremor and invite them to refer patients to our support network. Peer support can play an important role in reducing isolation and improving quality of life for those living with rare neurological conditions.
Our Mission
Our mission is to connect, educate, and empower individuals affected by Orthostatic Tremor, while increasing awareness of this rare disorder and advocating for continued research and improved treatment options.
Together, we can ensure that no one faces Orthostatic Tremor alone.
Contact
For questions or to request Zoom meeting details, please contact:
We look forward to welcoming you!